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Glycopyrronium Bromide tablets - UK (NHS)

 
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StanleyUK



Joined: 19 Mar 2010
Posts: 2

PostPosted: Fri Mar 19, 2010 11:37 am    Post subject: Glycopyrronium Bromide tablets - UK (NHS) Reply with quote

Hi all,

This is my first post on this site, and firstly I want to say a big thank you to everyone for the information posted so far. I have suffered with HH for most of my life, but without the knowledge of what the problem actually was, I just put it down to being a generally sweaty person.
My main issue was Palmer HH, but still suffering with sweating from other parts of the body, but not on such a frequent or dramatic level. Having spent a little time researching this problem over the internet, I came across this site, and have now been able to address the issue with my GP, and subsequent referral to a Dermatologist.

Being in the UK, this was done through the NHS, and the Dermatologist I saw during consultation first wanted to put me on a once-weekly Ionto course, but after a little discussion (due to work commitments I couldn't really be available for once-weekly treatments), he agreed to prescribe Glycopyrronium Bromide tablets, at a dose of 2mg daily (2 month initial course of treatment). To my relief, the cost of this was just standard NHS presciription charges (GBP 7.20!). Something of a good deal compared to the cost in other countries.
The rub of this being, at present, as the treatment is unlicenced in the UK, there is much more paperwork to be done before I can actually receive the tablets. I should be able to collect them in aprox 1 week from the date of this post.

I will use this forum as a journal of my progress, and note whether the NHS will allow me to continue on this course after the initial prescription runs out (as it is unlicensed, the cost to the NHS is very high).

More posts to follow, and thank you again for everyones sage advice and experiences in helping other suffers like me see the light at the end of the tunnel!

__________________________________________________
Symptoms of my HH are as follows:
Palmer HH, and very cold hands for much of the time.
Minor Auxillary HH (Mostly able to be controlled by Mitchem / Dryclor)
Very occasional sweating at top of thighs (mostly during time of anxiety)
Partner says I radiate heat at night (other suffers on here have noted this, too).

All above symptoms will be monitored and reported on during my post updates.


If anyone needs any information regarding the referrals etc, please feel free to PM me.

StanleyUK.
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