Search found 23 matches
- Sun Oct 30, 2022 4:30 am
- Forum: Tell Your Story
- Topic: I need advice/my story/struggle w Hyperhidrosis
- Replies: 1
- Views: 2136
Re: I need advice/my story/struggle w Hyperhidrosis
Hi. As you'll likely know, there are deodorants and antiperspirants, i.e. they're two different things (although you can buy deodorants that are also antiperspirants, and vice-versa). In terms of an effective antiperspirant for underarm sweating, there is a spray called Sweat Stop which seems popula...
- Sun Apr 09, 2017 5:10 am
- Forum: Glycopyrrolate (Robinul, Robinul Forte and Avert)
- Topic: Avert order from Canada
- Replies: 1
- Views: 7350
Re: Avert order from Canada
Hi. I ordered from pharmacy.ca between probably 2003-2009 (Avert pills for compensatory hyperhidrosis, and later Secure wipes). I always found their customer service excellent, and never had any problems receiving my order to the UK. However, obviously this was a long time ago now, so perhaps it wou...
- Sun Aug 28, 2016 1:59 am
- Forum: Acupuncture, Biofeedback, Deep Breathing, Hypnosis, Meditation and Other Alternative Treatments
- Topic: Good article about how acupunture can help with HH
- Replies: 2
- Views: 18846
Re: Good article about how acupunture can help with HH
Through the years I've tried it for compensatory hyperhidrosis and more recently nerve regeneration, no noticeable effects. :( However I have managed to get fitter and healthier (losing two stones in the process) over the last two years, so I think it maybe helped with energy levels which I was grat...
- Sun Aug 28, 2016 1:53 am
- Forum: Acupuncture, Biofeedback, Deep Breathing, Hypnosis, Meditation and Other Alternative Treatments
- Topic: Fennel tea
- Replies: 2
- Views: 7823
Re: Fennel tea
Hi. No I can't say I've noticed any change. :( So, so demoralising to still be fighting this years and years later, and 10x worse than pre-surgery. :cry: How anyone can read these forums and then still want surgery is absolutely beyond me. Just starting with nettle tea (another recommended for hyper...
- Sun Jul 24, 2016 3:46 am
- Forum: Oxybutynin (Ditropan) and Propantheline (Pro-Banthine)
- Topic: New Oxybutynin study showing favorable results
- Replies: 3
- Views: 9158
Re: New Oxybutynin study showing favorable results
I took this drug brief about a dozen years ago, but although it did help my CS a bit I just found the side-effects too much (e.g. drowsiness, spaced-out feeling, dry mouth, and headaches). :( The only thing I find these days that helps at all with my CS (and with as few side-effects as possible) is ...
- Sun Jun 05, 2016 5:45 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: Bone resorption
- Replies: 2
- Views: 7573
Re: Bone resorption
Hi. I had my operations between the ages of sixteen and eighteen (so not far off twenties), and have not noticed any height loss. Likewise my bones have always seemed fine - I've been lucky in never suffering any breaks, fractures etc. :) In terms of building up bone strength as a post-ETS person, I...
- Sun May 22, 2016 5:54 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: Bikram/Hot yoga after ETS
- Replies: 5
- Views: 13033
Re: Bikram/Hot yoga after ETS
I started doing yoga (using a guided DVD) about two years ago, but after six months or so switched to tai chi; I just found myself enjoying this much more. Of course though both are supposedly great for the body, and for us with the variety of post-ETS side-effects they can surely only do us good. :...
- Sun May 08, 2016 5:16 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: Here comes the summer... :(
- Replies: 0
- Views: 10202
Here comes the summer... :(
Hi. I live in the UK, and supposedly we are in for our hottest summer in decades. :( I hate the fact that I dislike summer so much and try to avoid it as much as possible since my side-effects started fourteen years ago. Trying to be positive (such as reading self-help books) but it's just so diffic...
- Tue Mar 15, 2016 7:40 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: For anyone who had the ETS surgery...
- Replies: 5
- Views: 10324
Re: For anyone who had the ETS surgery...
Hi. Well I think over the last thirteen years I've tried the following of the prescription-strength anti-perspirants: Driclor Odaban Anhydrol Forte Sweat Stop Maxim That's all I can think of at the moment. With any of these I've only ever experienced maybe a 10%-20% reduction in CS for the worst are...
- Sun Mar 06, 2016 3:53 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: For anyone who had the ETS surgery...
- Replies: 5
- Views: 10324
Re: For anyone who had the ETS surgery...
Hi. I know exactly how you feel, the side-effects really are terrible to cope with at times. :( I've tried lots of things over the years. A long time ago I went down the medication route to try and reduce my compensatory sweating. These medications include Robinul (also known as Avert and glycopyrro...
- Mon Feb 15, 2016 8:03 am
- Forum: Tell Your Story
- Topic: One of the most difficult side effects to deal with CS
- Replies: 3
- Views: 8624
Re: One of the most difficult side effects to deal with CS
Hi. That's brilliant, really pleased you've had some success. :) As tough as things can be with CS and other post-surgery side-effects there are some good 'alternative' ideas, treatments and products out there. I guess we all just need to keep helping and educating each other eh. :) For CS I was rec...
- Mon Feb 01, 2016 12:15 pm
- Forum: Tell Your Story
- Topic: One of the most difficult side effects to deal with CS
- Replies: 3
- Views: 8624
Re: One of the most difficult side effects to deal with CS
Hi. :) I had sort of, but all I do really is just keep as hydrated as possible. Supplements containing Omega-3 (e.g. fish oil, flaxseed oil etc) are supposed to moisturise the body from the inside out, so I take 1-2 tablespoons of chia seeds a day. E45 is supposed to be good for dry skin but I'm not...
- Mon Feb 01, 2016 12:09 pm
- Forum: Endoscopic Lumbar Sympathectomy (ELS)
- Topic: UK experiences -- 20 cases
- Replies: 1
- Views: 8070
Re: UK experiences -- 20 cases
Cannot believe what I've just read. :cry: I've been through ETS and lumbar sympathectomy side-effects for fourteen years now, so I can at least take some comfort in knowing that I have built up as much experience and adaptive skills as possible in that time, but when I think of these twenty people g...
- Thu Jan 21, 2016 11:43 am
- Forum: Glycopyrrolate (Robinul, Robinul Forte and Avert)
- Topic: dry throat problem,HELP
- Replies: 1
- Views: 7294
Re: dry throat problem,HELP
Hi. It's good to hear that you're having a positive result. :) Re the dry throat, this unfortunately is quite a common side-effect of these medications. All I found you can do really is drink as much fluid as is safely possible, and sometimes I found throat sweets, lozenges etc helped (oh, and also ...
- Sun Dec 20, 2015 5:36 am
- Forum: ETS Surgery Discussions and Post ETS Concerns
- Topic: getting t3 t4 t5
- Replies: 8
- Views: 11216
Re: getting t3 t4 t5
Hi. I had ETS in 1999 and 2000. My personal experiences have not been good. It is undoubtedly effective for excessive palm sweating, but one of the many problems I've found is that it also stops you sweating from 'normal' areas like the underarms and face - vital for temperature regulation. Do a lot...